Wednesday, February 11, 2009

The Forest for the Trees

Yesterday was the big sedated echo in Boston. The day for the most part was pleasantly routine. The drive in was a breeze. I got to sit in the back seat of our 4-Runner, wedged between two huge Brittax car seats. The purpose of me sitting back there was to keep lil' Lu awake. And, it worked! Paul chauffeured while Luna and I read, played peak-a-boo and sang The Wheels on the Bus (okay, I sang, Lu looked on and giggled).

Once we arrived to Children's things moved quickly. Luna was weighed (in metric-pediatrics is done in all metric-and I think she was 8.76 km-I probably have that totally wrong, and if any math nerd wants to translate that to lbs, please feel free!).

We then were ushed to the tiny sedation room where Luna was given the Chloral Hydrate. The medicine smells and tastes foul, but Luna sucked it all down and was almost immediately intoxicated. Seriously, I've said this before, but watching a drunk baby is truly cute. That might be considered unhealthy, but hey, it's great amusement for the otherwise un-amusing hospital experience.

A fire alarm went off just as Luna was succumbing to the sedation. Neither Paul or I budged. Which is scary-and rather titanic-like-we both simply thought it was a test. A few moments later a nurse busted in to say toast was on fire on the cafe and can we follow her NOW to the 6th floor where there was another echo room we could use. (we were on the 2nd floor and directly above the cafeteria-it should be noted that the Architect was dubious of the burnt toast story-he mumbled something about duct work and the HVAC system shutting down...)

Eventually Luna was settled into the dark room for her test. And Paul and I took the opportunity to grab lunch (not in the cafe).

After the echo, we all met back at the sedation room. Luna emerged from her sedated state good and loopy-and thirsty.

Finally, Dr. Brown, Luna's Boston card-came in to discuss what he saw in her echo. The first thing he said, was that her heart function and valves are looking great. He seemed amazed at just how great she looks-and states this often.

But then he quickly follow-up with a bomb (at least for me, Paul didn't seem so shocked), saying her left pulmonary valve has narrowed again. I wasn't expecting this, though as Paul reminded me, it could take more than one cath to keep it open. The other two wild cards the doctor delivered were: her aorta has a narrowing. This is COMPLETE news to me, and has me confused. I didn't know the aorta actually narrowed?! And the other bit of information is that she has some blood vessels that may have to be cauterized when she goes in for the cath. The blood vessels-or more accurately one vessel-could have formed when Luna's sats were a bit lower pre-Glenn. I *think* it's actually a good thing, and shows her resilience-as it's her body's way of accommodating her unusual anatomy.

All and all the doctor seemed pleased-if not downright surprised-at how well she does with her special anatomy. And I'm guessing since our conversation was not more than 90 seconds, that none of this is really any big deal. (I also should mention that during the echo Luna's sats were reading 93!!!! This is beyond own sats typically read 96-98!!).

So, where do we go from here? Well, Luna's team will review the echo (her team is her cath tech, heart surgeon, and Boston and NH cards) to decide how quickly she needs her cath.

Really, this is preventative stuff. Treatments that will keep her healthy and growing for years to come. Like I said, forest for the trees.


Jeff Gallagher said...

Hang in there. Caths are not fun (minus watching the sedated baby part!), but as you know, it's all part of the big plan to get her healthy. Given her unique anatomy she is doing remarkably well. Nonetheless, we'll be keeping you in our thoughts and prayers as all those procedures can be trying. Let us know what we can do -- we're right over the bridge.

Mindi said...

"Narrowing" is a nasty, terror-inducing word for families like us. I'm sure you were mroe than a little set back. It sounds like they are not too concerned, though. That is good. Isn't it comforting that they can detect changes before they become problems. Lu seems so active and strong--just wait until they give her a little more breathing room. Something tells me you're in for it.:)


Claudette said...

Congrats Velandry seems Lu is doing well (all things considered). She is a little fighter. Can't wait to hold her again. She likes me without the glasses!!!


Mommy said...

It's the ol' "two steps forward, one step back" dance. You are moving in the right direction, sometimes the pace just feels a bit slow though. I'm glad the procedure went well - Luna is in great hands!

Mimi said...

I am all for "down right surprised!!!" Yay sweet Luna! Love her name. Just wated to say hi.

Mimi and Mia

Lyndsay said...

Thanks for the update; I think about you guys often.

I'm not sure that I could handle watching the drunk baby, but thanks for the affirmation that it isn't overly creepy, LOL!