Showing posts with label Travel with CHD. Show all posts
Showing posts with label Travel with CHD. Show all posts

Tuesday, January 12, 2010

Up in the Air






The girls play a game of 'make like a statue', while taking their SATS (blood oxygen level). **Note, neither read is accurate, the spot-odometer will not record properly with movement.

This coming Saturday we are taking a family trip to Jamaica. We booked our direct flights from Boston to Montego Bay a full year ago. Traveling with a family, especially with Luna, who will need the assistance of a Portable Oxygen Concentrator (POC) to breath at 33,000 feet; we just didn't want to mess around with lay overs. Just get us there in one foul swoop please.

As you can imagine, trying to obtain a POC in this post-9/11 world and post Christmas Day scare is no easy task. I personally have put about 10 hours or so into this effort. I thought I would document and post for the world the ABC's of air travel with Portable Oxygen Concentrators.

There are two different kinds of POCs; Continuous Flow and Pulse Dose. Luna's cardiologist prescribed the continuous dose, and with further research I learned this is why: Luna is only 22 months old and she has never been fitted with oxygen. Her sats sit at about 85% now at sea level, which simply put means; she can function just fine. However, put her up in the air, at the altitude equivalent of standing on a really high mountain, and her sats could be as low as the high 60's. She can hang there for about an hour (as prescribed by her cardiologist), so for the 4 hour trip, we've arranged for her to have an oxygen tank. Luna will travel with a continuous flow POC which was a little tougher to obtain for the flight-because of it's larger size. A pulse dose does just what the title suggests: bursts of oxygen are released from the contraption every minute or so. An adult can regulate to this pattern and take deep breathes on call. A 22 month old, not so much.

But the airlines are not all that crazy about having people wheel a tank of air (a combustible, no less) the size of a small piece of luggage on to the airplane.

You'll want to check with your airline, but don't be fooled into thinking you need to use their oxygen vendor. I called and was directed to this page at www.usairways.com There you will be able to download and print a physicians statement. And you will also find a link for Oxygen To Go-the advertised vendor on the site. If you have a little one flying, don't even bother calling; they will tell you you can only fly with pulse dose-but after a lot more digging I found that this is the unit you need, and it does supply continuous oxygen flow, and most importantly, it's FAA Approved.

Since we live in New Hampshire I used Keene Medical supply who are very nice to deal with. I went in yesterday to order and I will be back on Friday with Luna to pick up the unit and do a test run while I have her with me.

Insurance: another area where I wasted an hour of my life, so here is the quick lowdown: If your kid needs oxygen on a regular basis, you will have no problem getting it covered. Well, thankfully Luna doesn't fall into that category, so this is how the conversation went with me:

Me: "I really want the rental cost of this to go against our deductible."

Anthem: "Well, our policy is if the patient needs oxygen all the time, then we cover, if not, then typically not."

Me: "that shouldn't matter, she *needs* it to fly, and that is the issue here".

The subtext of course reads: "You don't *need* to fly."

I guess we all have different needs.

The claim is still pending, but since I need to reach our deductible anyway, I can anticipate paying $235 for the unit and another $50 for the batteries. The rental is good for a month. This is actually a good price.

So, wish us luck as we embark on our family adventure. Here's to hoping everything will be, as they say in Jamaica, "Irie Mon!"